I wish, just for one day, my managers, wife, anyone could live my life and see what it feels like the day after I take my meds.
Maybe I wouldn’t get cussed at as much.
I think I do pretty well dealing with this thing. I still play sports, live like nothing is wrong.
Just frustrating how I can explain how I feel sometimes.
By the way….
DETROIT PISTONS IN THE FINALS!!!! HAHAHAHAHAHAHAHAHAHAHAHAHA
AMEN bro. It’s hard to explain to someone what it is like to have a permenant case of the flu.
Have you thought about trying a different med? (Maybe you haven’t after the whole awful Tysabri thing.) But there are three other meds out there besides Avonex (which I think is what you take?). I started on Copaxone, which didn’t work for me personally, so I switched to a different med (Beta) and it’s working out a whole lot better. If Avonex isn’t working out for you, you might consider switching to something else that is more tolerable for you personally. On a side note, I wish other people could experience a L’Hermitte’s Sign, since there’s no good way to explain it if you’ve never felt it!
Blog a list of the physical symptoms you feel at that moment (let alone the emotional ones). I have trouble portraying that too as I don’t want anyone to really feel what I do, nor do I think they would really get it, but it might enlighen them to understand a little?