Lets start with Saturday…
I worked my second job as a dishwasher (heat and MS does not go well together, but I do it anyway) and got home about 1:30am. 3 O’clock rolls around and my car alarm goes off. I run outside only to find my passenger window smashed, dash/console destroyed, radar detector gone, and CD case took. Yea, great start to my Sunday. By the time the cops got there it was about 530, and I was in bed by 6am. Daughter wants up at about 830, so I struggle to stay awake while watching her. I’m supposed to work a double shift at the restaurant @ 1200 but didn’t make it in till 330 or so, worked till 11:30. Stayed up till about 12:30 after shower and such. Today I had to take my car in to the shop and get a rental. I didn’t get up till around 10:30 or so, I needed to sleep. Finally make it to work at about 2:00.
I still haven’t go enough sleep and my legs are sore and my hands are shaking again. My wife is upset with me because I’m “lazy” and would get out of bed. I don’t think she understands what its like when you don’t get enough sleep, work in a high heat environment on the weekends, and add that to stress.
To add to all of this, today is Avonex day, so I’ll be welcoming a nice throbbing headache tomorrow.
It’ll get better. It can’t a lot worse anyway, right? < g >You’ll start to get a feel for what you can push your way through without causing any major symptoms and hopefully your wife will learn to understand that this isn’t what you want. You’re as stuck with it as she is and you’re just doing the best you can. It is very hard for people who haven’t experienced it to wrap their minds around MS fatigue and the fact that you can’t just “walk it off.”Heat, viruses and stress are MAJOR triggers for me. You’ll learn to set some limits for yourself (like the spoons thing on MS Sucks) and find a balance.It sucks to have MS and you’ll still have crappy days but even people w/o MS have plenty of crappy days 🙂 It’ll get better, just hang in there!